Jacose Bell

Jacose Bell is currently Director of Patient Advocacy at Spark Therapeutics, and has been working with and learning from the rare disease community broadly since 2014. Her interests are at the intersections of policy, science, advocacy, and the rapidly evolving challenges for people to understand and access healthcare. Her motivation in work and life is to help build a healthcare ecosystem that works for all of us, and includes those affected by disease directly at the table of decision-shaping.