Debbie De La Riva
Debbie de la Riva has been in the community following the birth of her son with severe hemophilia 26 years ago. She has volunteered with the National Hemophilia Foundation in the capacity of co-chairing an annual meeting, has served as a committee member for the National Prevention Program and Steps For Living and worked as the Executive Director of the Lone Star Chapter of NHF. In 2018, she founded Mental Health Matters Too as a means of spreading awareness and knowledge of common mental health challenges associated with living with a bleeding disorder. She is currently contracted with Believe Limited's Let's Talk: Mental Health and consults with the National Hemophilia Foundation and Hemophilia Federation of America's on mental health content creation. She currently lives in Houston with her husband, Jorge, and they are sponsoring three children in Save One Life.
My name is Johnathan Duddleston, I have severe hemophilia A, factor viii deficiency. I am a husband and father of two young beautiful girls. I have been working in the developmental disabilities field for over ten years and am currently working as an investigator of abuse and neglect. I also have been an avid endurance athlete, competing in several different endurance races ranging from triathlon to obstacle course races with the goal of raising more awareness for the bleeding disorder community and showing the endless capabilities one can achieve through healthy living and consistent training.
Hi, my name is Hannah Lutz I am 27 years old and from Lafayette, Louisiana. I have VonWillebrands type three and I am also a registered nurse. I want to bring a global awareness to treatment access for bleeding disorders and be an advocate for my blood brothers and sisters around the world.
I was born and raised in Germany and moved to the US after high school. In 1999 I married my husband Shannon. We have 2 children. Aiden is 18, a freshman in college, Isabella is 14 and in 8th grade. Both of them have hemophilia A.
I have been an active member of different charitable organizations in numerous states on various levels. I am looking forward to getting involved again in the bleeding disorder community.
Generously Supported By:
Generously Sponsored By: