Clive Smith

I am the youngest of 3 brothers, all with severe haemophilia A.  As a child, I spend several years where I attended school either in a wheelchair or on crutches.  When I was around 10 years old, I was fortunate to start prophylaxis, where I treated myself 3 times a week to prevent bleeds.  I found this to be life-changing and for the first time I felt able to be normal.

Over the years, I have managed to overcome many challenges that the damage to my ankle joints have created.  I have run marathons, completed many cycle challenges and in 2015 I became the first person in the world with haemophilia to complete an ironman triathlon.  

Despite my challenges growing up, I consider myself to be incredibly fortunate.  In a community where over 75% of people don’t even have a diagnosis, let alone access to treatment, I now have the opportunity to give back to the global bleeding disorders community.  Alongside my blood brothers and sisters, I am excited to undertake this challenge and inspire real change within our community.