Sandesh
Ref# INMN044

About Me
My name is Sandesh. I'm a 19-year-old boy.
Birthday

My birthday is
May 15, 2002.
Geography
Country

I live in India.

Program Partner Organization Name

Hemophilia Society - Manipal Chapter (INMN)

Diagnosis

Hemophilia B - Factor IX

Severity

Moderate

Monthly Family Income Range

$0-$50

My Story

 

 

Hello!

My name is Sandesh and I am 16 years old. I am in the 10th grade and am a good student. My favorite subject this year has been the Kannada language. I also love to draw. I would like to study to be an engineer when I have completed school.

I have moderate hemophilia B. I have recently received factor to treat bleeds in my elbows, knees, and ankles. The nearest hospital is 160km from my home, which takes 4 hours to reach by bus.

 

From left: Anand (father), Prema (mother), myself, Swathi (sister), Shwetha (sister)

I live with my parents and two older sisters. My father works as a coolie (daily laborer) and my mother works as a beedi worker (rolling tobacco). Both of these jobs have extremely low wages, with a combined monthly income of $50. My family lives in a two-room house in the village of Kasargod. Our home has electricity but does NOT have running water, indoor plumbing, or a refrigerator. Meals are cooked over a wood or charcoal fire.